Mountains: The Journey for our Loved Ones and Ourselves

I remember when we started early intervention. The thought behind it is that with a bit of intervention, my child would catch up to his peers. The reality is, at the time, I didn’t know that my view, and of the countless other experts, of the situation, was completely wrong. “Let’s get him the help he needs to catch up,” they would say. Of course, we wanted that! I mean, look at his sister so happy and healthy, in no

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Anticipatory Grief: Sibling Perspective

Community Submission by: Ameera Rey One minute you are laying in bed. Eyes closed. Trying to go to sleep. Then you have an out-of-body experience. You are in the hospital. A doctor has just walked in and told you the person you love so much is dead. You are sobbing. So extremely angry. Angry you couldn’t save him. Angry you couldn’t protect him. Angry his body was riddled with a disease that stole his life. You’re so angry that you

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Performance Masquerading as Advice Helps No One

“He should have access to his voice at all times,” she wrote.  Out of context, it would be hard to know what to make of a statement like this, but I think most of us would be inclined to think it is correct, or good advice, or at least true as an aspiration. Unfortunately, in this case, it was more like a weapon. I should have expected it. After all, the internet seems to spawn a whole population of individuals

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A Testimony of Strength

For a year and a half, I worked out in the room attached to our playroom. There is a sliding glass door that leads into a mostly glass room which looks out into the backyard. This also means anyone who is in the playroom can see me peddling away on the Peloton. Over the last year that everyone has been home, there are days my husband would say, “take a ride,” and if you need exercise as I do, many

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