Just weeks after our diagnosis, wound still fresh and raw, I took my son with me to the store. I was standing in line waiting my turn, him in the cart looking at me while smiling sweetly and slouching over from the lack of core strength, when the employee behind the counter said, “he is so cute!” I politely smiled, said thank you, while inside my heart dropped. My head, it retaliated with, “will you think he’s cute when he
Our son, Asa, turned five this week. The best picture I could manage of him (and his Covid hair) with his cake is this one. Here is what is going on in this picture: Asa does not know he is turning five. He does not know what a birthday is. He does not know what “five” is. He does not know what a number is. Asa has no idea the object on the table is a cake. However, like every
When we decide to become parents, we never imagine our child is going to be anything less than “perfect,” with 10 toes, 10 fingers, and the best parts of ourselves and our partner. The harsh reality is that this is not always true. Some people find this out early when their child is still in the womb. Others find out seconds or minutes after their child is born. Then there are those who find out years later. I am in
